Searchable abstracts of presentations at key conferences in endocrinology

ea0038p309 | Pituitary | SFEBES2015

Developing a pituitary distress thermometer (PDT) – a means to improve patient quality of life

Jackson Sue , Norman Alyson , Crown Anna

Introduction: Patient distress may be associated with a reduced quality of life (QoL), poor adherence to treatment and lower satisfaction with medical care. Best practice guidance recommends that distress is assessed at key points within the patient-care pathway. The aim of this study was to develop a pituitary-specific distress assessment tool.Method: Working with the Pituitary Foundation, a Wellbeing Survey was generated, comprising 36 pituitary-specif...

ea0050p282 | Neuroendocrinology and Pituitary | SFEBES2017

Understanding the psychosocial needs of pituitary patients: a survey of Pituitary Foundation members

Forrest Hannah , Norman Alyson , Jackson Sue , McBride Pat

Background: Management of pituitary conditions is notoriously difficult and patients often experience high levels of distress which are often not addressed by health professionals. As a result, pituitary conditions have been found to have a large negative impact on quality of life. The aims of this study were 1) to identify the psychosocial symptoms associated with pituitary conditions, and 2) to identify any differences in symptomatology...

ea0050p296 | Neuroendocrinology and Pituitary | SFEBES2017

Connected, supported, informed: experiences & benefits of membership of the pituitary foundation

Underwood Anneliese , Norman Alyson , Jackson Sue , Forrest Hannah , McBride Pat

Background: Pituitary conditions have been found to have a significant impact on quality of life. As such it is important that patients have access to support services to ensure their ongoing physical and psychological needs are met. The aim of this study was to explore the experiences of patients with pituitary conditions who are members of the Pituitary Foundation to better understand how the Foundation supports their needs.<p class...

ea0050p282 | Neuroendocrinology and Pituitary | SFEBES2017

Understanding the psychosocial needs of pituitary patients: a survey of Pituitary Foundation members

Forrest Hannah , Norman Alyson , Jackson Sue , McBride Pat

Background: Management of pituitary conditions is notoriously difficult and patients often experience high levels of distress which are often not addressed by health professionals. As a result, pituitary conditions have been found to have a large negative impact on quality of life. The aims of this study were 1) to identify the psychosocial symptoms associated with pituitary conditions, and 2) to identify any differences in symptomatology...

ea0050p296 | Neuroendocrinology and Pituitary | SFEBES2017

Connected, supported, informed: experiences & benefits of membership of the pituitary foundation

Underwood Anneliese , Norman Alyson , Jackson Sue , Forrest Hannah , McBride Pat

Background: Pituitary conditions have been found to have a significant impact on quality of life. As such it is important that patients have access to support services to ensure their ongoing physical and psychological needs are met. The aim of this study was to explore the experiences of patients with pituitary conditions who are members of the Pituitary Foundation to better understand how the Foundation supports their needs.<p class...